Hospice

Well everyone it's been a while since I have posted and becasue so much has happened since then I will post about the present. Hospice is now visiting us once a week to check up on Josiah. He has a hospital bed in his room. I am glad he gets a more comfortable bed. Josiah is not walking on his own without assistance so I help him walk wherever he wants to go. The steroid's side effects have been very devasting to all of us. This kind of steroid messes with your moods, it makes you gain so much wiehgt due to the water retension and the swelling of your face and belly, it shuts down your adrenal glands temporarily, and your appetite increases. For a child to gain 20lbs is a big deal Josiah now weighs 63lbs. I can hardly lift him. He seems very tired in the afternoon, but in the mornings we go to school. Everyday my energy goes to being happy around Josiah. I figured well it's very easy to be sad and depressed so being happy is what I strive to work for, especially in front of my boys. My little Josiah has gone through a grueling and hard journey. I just pray that I can help make this all a little easier. I don't know how but I ask that God would help me.